[106] On the other hand, genetic testing has potential downsides such as genetic discrimination, loss of anonymity, and psychological impacts such as discovery of non-paternity.[107]. Shelly the tech I have an inherent right to have my DNA tested and and to keep the results private. Bloom's wife has said he didn't know he was genetically predisposed to blood clots. The FDA’s commentary? At first glance, the answer would appear to be yes. you devices, If I have to live off of roots and grubs to avoid kowtowing to you and the medical monopoly, I will. [19] The first plant genome - that of the model organism Arabidopsis thaliana - was also fully sequenced by 2000. We don’t believe it should be sold, traded, or bartered.” Yet, we’ve already seen that their policy with respect … Get out of my medical choices. Certainly no one who heeds the advice of the FDA nor anyone unfortunate enough to be sucked in by or is otherwise unable to fight that money machine. We cannot take action unless we see “the man behind the curtain”, and once we know which companies are behind this, I would suggest the organizing of a BOYCOTT of said companies and their products, by all concerned citizens. If ultimately signed into law by governor Jerry Brown, it will be the first of its kind enacted in the U.S. That really stincks. And once again Big Brother does whatever the heck they wish to do. Enough is enough! you? Insurance company interference withDNA testing and progress in medicine that could revolutionize preventative care usually has to do with their bottom line–not concern with your health. This Slave Master mentality, that people are not “allowed” to do get their own DNA tests? Read Edit History Discuss. There are different levels and purposes for screening. Henrietta and her family are not the only ones who have encountered ambiguity in cellular ownership. Don’t be delusional enough to believe other wise. During the Golden State Killer case, it’s been made clear that genetic profiling of an individual can occur even without their DNA. They are from lifestyle. the only thing you need to get FDA on our side is to get private industry (read here: Monsanto and the like) employees s out of the senior positions at the FDA. Due to recent cost reductions (see above) whole genome sequencing has become a realistic application in DNA diagnostics. [106], Privacy concerns can also arise when whole genome sequencing is used in scientific research studies. The FDA’s true message is clear: because individuals can’t be trusted to make sound health decisions, they don’t have a right to private information on their own DNA. If ultimately signed into law by governor Jerry Brown, it will be the first of its kind enacted in the U.S. Photo: Col Ford and Natasha de Vere/Flickr, This post was originally published on Smartplanet.com, How a cosmetology student launched a multibillion-dollar industry, The most popular startup you've never heard of, Upstart | Anu Duggal, Director of the Female Founders Fund, Innovator | Sophie Vandebroek, CTO of Xerox. Property rights get messy when DNA is involved. This is a basic right. I am absolutely against the FDA trying to control DNA testing, but that part of your argument that healthcare agencies will use DNA info to deny health coverage or raise rates does not make sense now that one can get coverage regardless of pre-existing conditions. In the mid-1970s, John Moore suffered from hairy-cell leukemia, a rare form of cancer where white blood cells grow hair-like projections. When it comes to healthcare, is newer necessarily better? After all, it did come from your body. This is the FDA’s idea of Good for the public . "It's becoming easier and quicker and cheaper for people to obtain their genetic profile or genetic information," California state Senator Alex Padilla, the California bill's author, told Scientific American. This database alone will trigger tremendous understanding of the genome and fuel medical innovation. Of course the insurers want to have as much info as possible to either raise rates or deny coverage (I’ve worked for 2 insurance companies, one being healthcare, and the other home & auto – not as a claims adjuster, but over on the IT side of things… but I still got to hear plenty – and I don’t work for them any longer; my choice).