PART Ill-DATA COLLECTION AND PROCESSING 4. 2. Genetic Information Privacy Act of 2019 . And then it … This resource gives an introduction to GINA and its assurances in health insurance and business. Status: Referred to the Subcommittee on Consumer Protection and Commerce. It includes answers to common questions and examples to assist you to learn. Interpretation . THE DATA PROTECTIO:\' A:\'D PRIVACY ACT, 2019. ARRA:\'GE\1E~T OF SECTIONS Section PART I- PRELI:vII:--iARY 1. Principles of data protection. They also typically store your personal information and your genetic data in separate environments to protect against a potential hack. Functions of the personal data protection office 6. PART Il-PRil\ CIPLES OF DATA PROTECTION 3. Genetic Information Nondiscrimination Act (GINA) The Genetic Information and Nondiscrimination Act of 2008 (GINA) protects the genetic privacy of the public, including research participants. GINA has faced significant criticism since its enactment in 2008: commentators have dismissed the law as ill-conceived, unnecessary, and ineffective. Establishment of the personal data protection office 5. US Congress HR2155 2019-2020 To provide for certain requirements with respect to the treatment of personally identifiable information by genetic testing services Genetic discrimination is the misuse of genetic information. They had a very prominent privacy promise on their website. This article examines the current landscape of genetic privacy to identify the roles that the law does or should play, with a focus on federal statutes and regulations, including the Health Insurance Portability and Accountability Act (HIPAA) and the Genetic Information Nondiscrimination Act (GINA). Genetic privacy involves the concept of personal privacy concerning the storing, repurposing, provision to third parties, and displaying of information pertaining to one's genetic information. The Genetic Data Nondiscrimination Act of 2008 (GINA) federal law that secures people from hereditary discrimination in health insurance and business. So Family Tree DNA, you know, signed on to a privacy statement that said we're not going to share information. Data protection … We argue that the Genetic Information Nondiscrimination Act (GINA) offers a blueprint for preventing employers from breaching em-ployee privacy. Application .